Speaker Series Overview

The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Speaker Series consists of webinars and enduring materials designed to share knowledge and experience related to the care of children and adults with Down syndrome and clinical research related to Down syndrome. The intended audience includes primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees. The education includes live webinars that will be recorded and posted later as enduring materials. There will be a separate registration for the enduring programs.

SESSION IV: PEDIATRIC GUIDELINES

Date: October 25, 2022

Time: 7:00 – 8:00 PM EST

Speaker: Marilyn J. Bull, MD, FAAP; Morris Green Professor Emeritus; Department of Pediatrics Indiana University of Medicine; Neurodevelopmental Pediatrician, Riley Hospital for Children


In this webinar, Dr. Bull will share an informative update on the Pediatric Guidelines. Upon completion:

- Participant will understand how to best communicate news of Down syndrome diagnosis to families.

- Participant will learn new recommendations for hematologic testing.

- Participant will learn new recommendations for thyroid testing.

- Participant will understand enhanced recommendations for evaluation of co-occurring autism and behavior problems in Down syndrome.

- Participant will learn how to access the American Academy of Pediatrics Health Supervision Guidance for Children and Adolescents with Down syndrome and utilize the resources it provides.

Register Here

SESSION III: Behavioral Strategies in Down Syndrome: A Multi-Disciplinary Approach

Date: May 18, 2022

Time: 7:00 – 8:00 PM EST

Speakers: Lina Patel, PsyD and Katie Frank, PhD, OTR/L


In this webinar, Drs. Patel and Frank will discuss the following in relation to individuals with Down syndrome of all ages…

- Common behaviors and the reason for them

- Strategies that can be used to address these behaviors

- Different approaches to behavior by discipline

Watch the Recording Here

If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.

CME Credit Registration


Session II: ADULT HEALTHCARE GUIDELINES

The First Evidence Based Medical Care Guidelines for Adults with Down Syndrome:

What Medical Providers Need to Know!

Date: January 11, 2022

Time: 7:00 - 8:00 PM Eastern

Speakers: Peter Bulova, MD, Brian Chicoine, MD & Bryn Gelaro, LSW


Adults with Down syndrome require specific medical care that can differ from the general population, but most do not have access to Down syndrome specific medical provider. To address this need, the Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome were created and published in JAMA in 2020. In this webinar, GLOBAL Guideline authors will share the 9 medical topics covered in the first version of the guidelines and the evidence supporting the guideline’s 14 recommendation statements. Attendees will learn how to access and share the Global Guideline with their patients, plus get a look at the newly created toolkits, language translations and family-friendly version. In addition, the speakers will share the current gaps in the literature base and the future research needed for the next Global Guideline update, expected in 2025-2026.

    Watch the Recording Here

    If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.

    CME Credit Registration


    SESSION I : DOWN SYNDROME 101 AND 202

    Speakers: Peter Bulova, MD; Mary Stephens, MD, MPH


    This session is intended for primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees.


    At the conclusion of this presentation you will be able to:

    • Discuss common conditions in individuals with Down syndrome (DS)
    • Describe ways to promote wellness throughout the lifespan of individuals with DS
    • Identify resources to reference to help provide better care for individuals with DS that you support

    Watch the Recording Here


    If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.

    CME Credit Registration

    Special thanks to our Speaker Series SupporterS

          

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