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Updated 07.08.14


Registration for the 2014 DSMIG-USA Annual Symposium on July 11th at the JW Marriott Indianapolis


Registration is now CLOSED as of 12 Noon Tuesday July 8th


Online registration is now open for the 2014 DSMIG-USA Annual symposium to be held on July 11th at the JW Marriott Indianapolis.Don’t forget that we are also planning a Welcome Reception and poster viewing at the hotel on July 10th from 7:00 pm – 8:30 pm.


Here is a link to the symposium information and the online registration:




A limited number of rooms for symposium attendees is available in the National Down Syndrome Congress (NDSC) Annual Convention block:


Course Description and Intended Audience

This symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG - USA members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses, Down syndrome clinic coordinators, psychologists, dieticians, occupational and physical therapists, speech and language pathologists and social workers. Residents and trainees are welcome to attend.


Topics Include:     

The Health Care Transition into Adult Life for Youth with Down Syndrome

Mary Ciccarelli, MD

Riley Hospital for Children at IU Health, Indianapolis, IN


Employment, Unemployment, Communication and Technology in Adults with Down Syndrome
Libby Kumin, PhD, CCC-SLP

Loyola University Maryland, Baltimore MD


Audience Discussion and Q and A with Mary Ciccarelli, Libby Kumin and

W. Carl Cooley, MD 

Center for Medical Home Improvement, Greenfield, NH


Feeding, A Challenge and Triumph for Down Syndrome

Marilyn Bull, MD

Laura Bobinsky, CCC-SLP

Donna U. Watkins MSN, NNP-BC

Joanne Whelan,RD

Riley Hospital for Children at IU Health, Indianapolis, IN


An Update on the New Down Syndrome Growth Charts

Babette Zemel, PhD

Children’s Hospital of Philadelphia, Philadelphia, PA


Behavioral Concerns in Down syndrome: Cognitive Etiology, Manifestations, and Interventions

Anna J. Esbensen, PhD

Cincinnati Children's Hospital Medical Center, Cincinnati, OH

David S. Stein, PsyD

Children’s Hospital, Boston, MA


National Down Syndrome Registries and Resources

Daniel Coury, MD

Nationwide Children’s Hospital, Columbus, OH

Brian Skotko, MD, MPP

Massachusetts General Hospital, Boston, MA

Melissa Parisi, MD, PhD

NIH/NICHD, Bethesda, MD


Top 5 Down Syndrome Articles of the Past Year

Peter Bulova, MD

University of Pittsburgh Medical Center, Pittsburgh, PA


New! Workshop Choices:


Workshop A

Otolaryngologic Manifestations in Down Syndrome:

An Update of Current Literature and Treatment Options

Sally Shott, MD

Cincinnati Children’s Hospital Medical Center, Cincinnati, OH


Workshop B

Group Discussion on Health Care for Adults with Down Syndrome

Workshop Moderators:               

George Capone, MD - Kennedy Krieger Institute, Baltimore, MD

Peter Bulova, MD - University of Pittsburgh Medical Center, Pittsburgh, PA



Other features:

·         Welcome reception Thursday evening (July 10) - We are grateful for support of this reception from SureStep

·         Poster presentation (viewing starts Thursday evening)

·         Information and Announcements Board (bring information to share about clinical programs, research and opportunities)

·         Clinic coordinators meeting (July 11 evening)


Remember that the meetings of DSMIG-USA and the National Down Syndrome Congress (NDSC) are separate meetings held at the same venue. Registration is required for each meeting.


If you also plan to attend the NDSC convention July 11-13, go to the NDSC website for more information about registration which opened March 3rd. Go to


Hotel Information:

Register in the hotel block for the National Down Syndrome Congress Convention.

Hotel registration opened on March 3rd. These rooms fill up quickly so reserve now!


JW Marriott Indianapolis website:                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                               

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