Down Syndrome Medical Interest Group - USA - Health Care for Children

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Health Care Resources for Children

Health Care Resources includes: practice guidelines, reviews and research articles on child health and health utilization. Full text articles from PubMed Central, links to NLM PubMed abstracts and additional resources are available from this page

Health Care Guidance

Health Supervision for Children and Adolescents With Down Syndrome April 2022

Growth charts for children with DS in the U.S. Zemel, 2015

Health Supervision for Children with DS Revisited 2011 Letter PDF

Health Supervision for Children with DS 2011 PDF

Health Supervision for Children with DS 2011PDF (Spanish)

Links

CDC DS Growth Charts 2015

For Families

Health Care Information for Families of Children with DS 2013 PDF

Caring for Children with DS and their Families,Van Ripper et al 2001 PDF

Research and Review Articles

Adherence to symptom-based care guidelines for DS Santoro, 2016

Role of the family physician in the care of children with DS Bunt, 2014

Contributions of a Specialty Clinic for Children and Adolescents with DS, Skotko, 2013

Death among children, adolescents and young adults with DS Miodrag, et al 2013

Trends in survival among children with DS in 10 regions of the U.S. Kucik, 2013

Health Care Needs of Children with DS and Impact of Health System Performance on
Children and Their Families, Phelps, 2012

Direct Health Care Costs of Children & Adolescents with DS, Geelhoed, 2011

Health of children 3-17 years of age with DS in the 1997-2005 National Health Interview Survey Schieve, 2009

Health Utilization

Children with DS: Clinical course and mortality-associated factors in a French medical paediatric intensive care unit Joffre, 2016

National Profile of Children with DS - Disease Burden, Access to Care and Family Impact, McGrath 2011

DS Addressing the Gaps, McCabe 2011

Variation Over Time in Medical Conditions and Health Service Utilization of Children with DS, Thomas, 2011

Access to Genetic Counseling for Children With Autism, DSand ID, McGrath,2009

Health care expenditure for infants and young children with DS in a privately insured population, Boulet 2008

Hospitalizations of infants and young children with DS: evidence from inpatient person-records from a statewide administrative database So, 2007

Additional Resources

AAP Healthy Children (DS)

Association for University Centers on Disabilities

American Academy of Developmental Medicine and Dentistry

CDC National Survey of Children with Special Health Care Needs

Data Resource Center for Child & Adolescent Health

DSMIG UK

GotTransition

MedlinePlus Health Information (DS)

Society for Developmental & Behavioral Pediatrics

Down Syndrome Medical Interest Group-USA

DSMIG-USA is a 501(3)(c) Organization

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